Saturday, October 31, 2015

And Then There Were None.

No more AC, no more Taxol!
Sure, I still have to deal with Herceptin and Perjeta; but from what they tell me, that'll be easy.

The night before my last round of taxol.  Chemo round 16, for anyone that is counting...  Heather and I decided to go to the Garth Brooks concert.  We ate dinner at Brio Tuscan Grill.  The food was good, but a bit too heavy for my tummy.  It made it so that I had to take three separate bathroom breaks during the concert!
Potty trips aside, Garth was amazing.  The man is an entertainer.
And Trisha Yearwood earned a few more points, in my book, by performing a song, dedicated to breast cancer patients.

While Heather and I were at the concert, Nick took our kids to Heather's house.  And he and Jeff fed the children.  My kids slept over at Heather's house, so that Nick could take me to chemo appointment the next morning.

I was so tired, but so happy. 
Sadly, Gary wasn't there for my last taxol treatment!  I think I heard the other nurses mention that he had food poisoning!  Poor guy.

Of course, the nurse assigned to me didn't do a great job accessing my port.
And my new case-worker, Alex, was on vacation.  So, Nick and I had to wait For-Ev-Er, to get things done.
I'm really missing Lori, my old caseworker.
As of today, I still don't know how things are going to work when it comes to my radiation treatments?
And my next round of chemo isn't scheduled yet either.
I'm sure it will all happen, in due time.  But for someone that is regimented as I am, not being able to put those important things on my calendar is driving me crazy!

Reagan's New School

Only time will tell, but I think the whole situation with Reagan transferring schools will be a blessing in disguise.

We arrived home from Hawaii, and Reagan went to school that Thursday.  After school, I got a phone call saying that Reagan would be starting in the Learning Center at Creekside Elementary Monday. That same afternoon, I took Reagan to an appointment with Dr. Vo.
After Reagan's appointment last month, the one where I found out she had gained 6 pounds...  I was really bugged about having Reagan on the abilify.  Nick and I discussed it (and may I say how handy it is to have a smarty-pants pharmacist for a husband?!), and we decided to discontinue giving Reagan the abilify.  It isn't a medication that we'd have to wean Reagan off of.  And that is always the hardest part, when it comes to medications!  I really didn't notice any improvement, by putting Reagan on it.  And when we stopped giving it to her, I didn't notice a difference there either....
I told Dr. Vo that we had stopped giving Reagan the abilify.  And she told me that it was the right decision.  That she had been fretting about Reagan's weight gain, as well.
We put Reagan on the scale at that appointment, and Reagan had lost 2 pounds.
Dr. Vo said she doesn't usually like to see her patients lose weight, but in this case... it was OK.

Reagan's 2nd grade class at Burton Elementary threw her a going-away party that Friday.

They didn't have the new bus schedule set up.  So, I had to drive Reagan to, and from school; all last week.
Well, I guess I should say, I found rides for Reagan and me.
Nick's Aunt Carla taxied us, and so did my neighbor, Sam.

I took a picture of Reagan, to commemorate her second, first day of school.

The past week went well.
There are 8 kids in Reagan's class (counting Reagan).
Her new teacher is Mr. Brown.  And there are 2-3 aides in the classroom.

Reagan has made friends, with her seatmate, Lauren.  They are so cute together.

In the morning, when the kids first come to class, Mr. Brown has a fun activity set up for them to do. One day, it was tracing with dinosaur templates.  Another day, it was a play-doh activity.  And so, on.
They're still doing grade-level work.
Reagan brought home homework.

And once she is able to start riding the bus (she's so excited at the prospect) I think she will be on cloud-9!

The entire school participated in a Halloween parade on Friday.  Reagan loved it:

As I said, time will tell.  But I am really hopeful that this is just what Reagan needs.

Elsa-isms.

The day after we got home from vacation, Cohen had a pre-school field trip to the pumpkin patch.
Elsa and I tagged along.
These two.  At first, I thought having them 14 months apart was a curse.  But really, it's a blessing. They are the best of friends.
Elsa, herself, is funny.
I have a entire notepad dedicated entirely to the hilarious things that Elsa says.

For example:
"I'm getting very drink-y" when she's thirsty.
"I yarned" when she yawns.
"I just "bless-you-ed" on myself!" when she sneezes.
"Look, a mail-bus" when she sees the mailman jeep.
"I can't hold that, I'm full-with-hands" when her hands are full.
"My nose is fluffy" when her nose is stuffy.

Or, the time she had a lesson about the Holy Ghost, at church.  But she misinterpreted what they were saying; and later that week when we were driving past our neighbor's house...  The neighbor's that have a farm...  Elsa shouted out: "Look Reagan, it's the holy goats!  We learned about the holy goats at church, and there they are!".  I didn't have the heart to correct her.

Over the summer, one afternoon Elsa decided to put her artistic skills to work, and she drew pictures of "butts" all over the walls in the hall, and guest bathroom.
I had just started chemo, and I was none-too-happy to be cleaning pictures of butts off of the wall.

Earlier this week, I found one picture I must have missed.
Now I can laugh about it

But the Elsa-ism that really takes the cake happened while we were in Hawaii.

Elsa was listening to a Katy Perry song, Hot and Cold.  She kept rewinding an excerpt from the song, and listening to it over, and over.  And she was laughing hysterically!

Kay asked Elsa, what was so funny?
Elsa replied, "she says PMS".

Kay said, "Elsa, do you know what PMS is?".
Elsa responded, "You know, Grandma, it means, like, peeing-a-mess on the floor".

Then, it was my turn to laugh!
In fact, I'm still laughing.

Vacation.

The story begins over six years ago.
When Nick graduated from Pharmacy School our Pharmacy Family decided that we'd have our five year reunion in Hawaii.
Nick had never been to Hawaii, and I know he wasn't thrilled at the prospect of vacationing there.
We took Reagan with us to Oahu in October 2014.  That trip changed Nick's mind.  He wanted to visit again!
In April of 2015 (before I was diagnosed with cancer) I found roundtrip airfare to Honolulu for $320 out of SLC.  How could I pass a deal like that, up?!  I purchased 5 tickets, so that our whole family could go this time.
I also booked us a no-frills VRBO house, because the price was right.  The house was very dated, and it wasn't close to the beach.

Then, I found out that I had cancer, and all of our Hawaii plans didn't seem like they were going to happen.
Nick and I agonized about it!
We hit our $10,000 out-of-pocket insurance maximum after my first round of chemo; and ever since then it hasn't been like funds are freely flowing in our household.  Our insurance deductible will reset in January, so we're trying to plan/budget for that too!

Fighting through chemo has been no easy thing.  For any of us.
In the end, and since we had already purchased the airline tickets, we decided to make Hawaii happen.
Nick's parents excitedly volunteered to come with us.

Nick isn't a fan of using my cancer as an excuse, or to procure favors.  So, he wasn't on-board with my idea to contact Marriott, to see if they could help us out with lodging.
It was a good thing I ignored Nick's protestations.

We are Marriott Elite members.  We've been loyal to them for years!  I figured it couldn't hurt anything to ask for them to return the favor.  And they did!
Joseph Trott, at Marriott; offered to take $150 off per night, of our room rate for a 2-bedroom Villa at the Ko' Olina resort.
It was amazing!
Upon arrival, they did even more for us.  We were given a room on the 8th floor, beachfront!
Marriott earned my loyalty, for life.

The resort was gorgeous.  Thank you, Marriott.

We made every attempt to be thrifty on this vacation.  Did you know that Cotsco polish dogs and a drink are still only a $1.50- even on Oahu?!
That was where we ate, our first night on the island.
We also picked up groceries, and did a lot of cooking in our Villa Kitchen.

DAY 1: Was travel, a quick layover in San Diego.  We picked up our minivan in Honolulu, went to Costco, and then spent the rest of the day lounging at the lagoon at our hotel.

DAY 2: The first morning there, we splurged, and went next door to the Disney Aulani, to have a character breakfast.
Cohen was so excited to meet Mickey!

This character breakfast was far better than the character breakfast we did in Orlando at Disney World.  The characters came around to the tables multiple times.  And the show/parade they let the kids participate in was so fun.  Even Reagan got in to it!

When we finished with breakfast, we discovered that we had missed the shuttle back to our resort by, literally, 20 seconds.  We were going to walk, but the people at Disney quickly grabbed one of their 6 people golf carts, and drove us back to our hotel!

After the breakfast, we drove out to Laie and visited the LDS temple and visitor center.
Dave was itching to play in some real waves, so we stopped at one of the beaches on the North Shore...  Shortly after exiting the car, a lifeguard came over to us and said that we couldn't have our little kids anywhere near the water, because the waves were too high, and the undertow too strong. So much for that.
We hit up the Dole Pineapple plantation.  But not to do the maze, or anything.  My sole purpose in that stop was to get a Dole Whip float.  Oh l'amour.  Isn't fresh pineapple heaven?
I think that was the day we at at Just Taco's, across the street from our hotel.  Before the trip I had purchased an Entertainment coupon book, and one of the coupons was for 50% off our bill.  Mexican Food in Hawaii?  Not really what people go for.  But like I said, spendthrift was the theme of this vacation.

Day 3:  Nick and his parents went to Pearl Harbor, and the USS Arizona memorial.  The kids and I rented a DVD from the DVD kiosk at the hotel; and I did laundry (having a washer and dryer in our villa was a total luxury, and lifesaver for me)!

When Nick got back, Dave, Kay, Elsa, Cohen, and I went to the Polynesian Cultural Center.  Again, Entertainment Book to the rescue!  We had coupons for 50% off admission!  And Cohen was free.
Nick stayed at the hotel, and took Reagan to the pool/water park.

This is the outfit that Cohen started out in:

We were watching the Canoe parade, and I asked Cohen if he needed to go potty.  He told me, no.  I asked him again, and literally, in the middle of adamantly denying that he needed to use the facilities, he wet his pants!
I hadn't packed a change of clothes.  So, I ended up purchasing a new outfit for Cohen at the shops they just opened at the PCC.  I bought a size bigger than Cohen usually wears, so at least he'll be able to sport this Hawaiian attire next summer:
The PCC was my favorite activity.  The kids loved riding the canoe.  And they were pretty well behaved.   All of the PCC employees are so funny!  The Samoan village presentation always leaves me in stitches!

DAY 3: Nick and Dave went snorkeling at Haunama Bay.  It wasn't until after-the-fact, that Reagan showed off her mad snorkeling skills!  Had we known, Reagan would have gone with them!

After that, Dave, Kay, Reagan, and I went to the Swap Meet.  And Cohen and Elsa got their turn in the hotel pool, wit Nick.
I have never been to the Aloha Swap Meet.  It was so fun!  But also ridiculously hot.  Like, face-of-the-sun hot!  I spent most of my time soaked in sweat, on this trip.  But I shouldn't complain...  I was in fabulous Hawaii!
Reagan and I both ate some shave-ice to cool down.

I honestly don't remember what we did for the rest of the day?
It's times like this that I get so frustrated.  The loss of my short-term memory makes me so mad!  I can't recall details the way I used to.  My blog has been such a blessing, in that respect, because I've been able to look back and say, "oh, yeah! I had forgotten about that".

And, thank goodness for pictures!  They jogged my memory, and reminded me that we went to the Sea Life Park.
Before that, though, we had lunch at Ono Steak & Shrimp Shack.  Their fish taco's are heavenly! And if you're a Yelper, you get 50% off, when you check in!
Dave and Kay ordered shrimp plates, and gave them raves as well.

We got to the Sea Life Park 2 hours before closing.  The nice lady at the ticket window gave us 40% the price of admission.  Score!



The touch pool was under construction, so the kids didn't get to touch any of the sea creatures.
But the one of the trainers at the park, had the Wolphin (half killer-whale, half dolphin) give us a private show.  That made up for the disappointment of the lack of touch pool.
We watched a dolphin show, and when the trainer asked for a volunteer, you had better believe that Reagan was out of her seat quicker than a kiss!  They wanted volunteers to sit on the front row, and get wet by the dolphins.  Reagan was more than happy to oblige.

DAY 4: Was our BEACH DAY!
Last year, we used Hawaii Beach Time, to rent a setup for our beach day.  I wasn't in love with their services, but they're the best option, all things considered.
I contacted them, to reserve things for our beach day, this trip too; but apparently, they don't do deliveries to the places they used to.  Sad.
Nick and I really wanted to go back to Lanikai beach.  But two days prior to that, there had been a shark attack at that beach...
So, we went to Kailua beach instead.

The kids boogie boarded:
But even Kailua wasn't safe.  I noticed (what I originally thought was) a piece of bubble wrap with a blue string attached?  As I got closer, I realized it was a beached jellyfish.  I also noticed that they were all over the beach.
A local, that was walking along the beach said that Kailua is always littered with Portuguese-man-o-war's when there's a full-moon.  She told me to "take care".
I was all-too-eager to leave, when Nick suggested it.
We decided to take our chances at Lanikai.

It has to be one of the most gorgeous beaches on the planet.
Sand as soft as flour, and beautiful turquoise water.

We didn't see any sharks, but we did see an enormous black fish.  The saddest part was that we didn't have any Stand-Up Paddle boards to play on.  But we still had fun.
After we left, we grabbed lunch at Crepes, at Crepes No Ka 'Oi.  Savory Crepes, and Sweet Crepes; they did both of them well.

We decided to try the North Shore, again.  We found a different beach.  Nick and Dave headed out to the surf.  They took turns holding the kids' hands, but those waves!  They were still knocking everyone down.  It was nuts.

DAY 5: We had a lazy morning.  We went to Costco (again).  Sadly, their food court was closed for remodeling, so we had lunch at McDonald's, instead.
And then, we went to the airport, to catch our flight home.

5 minutes before we were supposed to start boarding, an announcement was made that a part on the plan needed to be replaced; and our flight was going to be delayed by 45 minutes.
45 minutes, turned in to four hours!
Alaska Air made sure that everyone on the delayed flight got a free dinner, so that was something, I suppose?
When I realized that we would not be getting in to the San Jose Airport (our connection) until after 1AM...  I started bugging the Alaska Air desk agent.

Most everyone else on the flight didn't have a connection.  For them, SJC was their final destination. For the 7 of us, that was not the case.
Shuttles stopped running at the airport at midnight, so we were going to have no way to get to our hotel!
The Alaska Air employee said she'd get me a voucher to pay for a taxi in San Jose.

We made it to San Jose and grabbed our luggage.  It was 1:30AM.
We went to find a taxi, and were informed that the voucher we had was for a taxi service that did not exist in San Jose!!!!
I was fit to be tied.
To top it off, the taxi driver that showed up with a mini-van didn't want to fit all 7 of us in to his vehicle.  Even though the hotel was half-a-mile away.  We had to be split up, and put in to two separate taxi's.

It was a nightmare!
All told, I think we got 5 hours of sleep that night.
Cohen and Elsa (and all of us, for that matter) were exhausted.
And then, as if things couldn't get worse???  The Alaska Air Ticket Agent at the San Jose airport, was totally giving Dave and Kay grief about their checked bag.  It was half-a-pound too heavy, according to her.  What a joke.

I will say, that one good thing that came out of the final leg of our trip, was that it gave all of us enough jet-lag, to get rid of the crazy sleep schedule you put yourself on when you travel to Hawaii.
We got home, and slept well.

Beyond the #alaskaairnightmare, our trip was very nice.

I am grateful we were able to make it happen.  And that we were able to reconnect as a family.
I am grateful that Marriott accommodated us.
In addition to having amazing views from our room:
The Marriott resort also saved us money, and my sanity.
It was ideal to have daily maid service.

And since the hotel provided us with beach towels, for use at any beach, not just at the hotel!  I saved money on baggage fees since I didn't have to pack as much.  The resort also had a "take it, or leave it" box; that housed beach toys; free for guests to use.  It was how we acquired the boogie board we took to the beach.  So cool.

We will remember this vacation, forever.

Sunday, October 25, 2015

I'm Not Dead Yet.

It doesn't seem like that long ago, when I was making assessments about round 1 of my chemo.

And now, here I am; making assessments about round 15!!!!

Nausea? Manageable
Hair Loss? Yes.
Mouth Sores? Gone.
Drippy Nose? Constantly.
Weight Gain? 23 pounds up, at last weigh-in.
Eyesight?  Still Poor.
Chemo Brain?  More like, loss of brain.
Fatigue? Perpetual.
Diarrhea? Like a river.
Change in Taste?  Not as bad as it was.  At least water doesn't taste gross anymore.  But chocolate still makes me turn my nose up.

New side-effects of chemo?
Neuropathy in my hands.  I fumble and drop things.  A lot.  It is like my hands aren't getting the signals my brain is sending to them.  And they hurt (both my hands and brain :)
Playing the piano is out of the question.  And frankly, typing this post is not easy.

Also, my fingernails have started to peel off.
I took such pains to care for my toenails.  After experiencing runners-toe, and losing toenails to that, I really didn't want to go through it again, because of chemo.  I should have taken the same care to pamper my fingernails, because now they are breaking off above the quick, and the skin is turning dark brown and falling off in places around my nail beds.

For round 14, my long-time pal, Kris came to town from Seattle.
In the time before Chemo, she and I ate out at yummy restaurants; went to see a movie, and did some outlet shopping.
I love that girl.

At my appointment, Dr. Buys could barely find the tumor, to measure it!
That was the good news.

The not-so-good-news, was that the antibiotics I had been taking to clear up my UTI had given me a massive yeast infection!
If it's not one thing...

I realized it had been a while since I had, had an energy healing session.  So, I high-tailed it over to see RaJean, and she cleared my system.  I immediately felt better.  And I am so glad that RaJean helps me.

Since round 14 was a "long chemo day", I had my port accessed in the lab, and not in the infusion room.  Both of the girls that usually work in the lab weren't there that day.  So, a girl I've never met before set-up to access my port.
I thought she inserted the needle correctly (when it's done correctly, I hardly feel it), and she thought she had done it the right way too, so she started flushing my port out with saline solution.

Holy BURN!  I was dying!
Turns out, she had not inserted the needle correctly, and she was pushing saline in to the tissue in my chest!
She pulled the needle out.
I was so traumatized.
A Nurse came in to the room, and tried to access my port.
She missed.
I knew it, because it hurt.

I was on the verge of high-tailing it down to Nurse-in-shining-armor: Gary.
The lab nurse was asking if this was the first time my port had been accessed?
Um, no.
I agreed to let one more attempt be made.  And the third attempt worked.  But the whole ordeal left my port bruised black-and-blue.  That was more than two weeks ago, and my port site is still bruised.


Chemo round 15 was about two days ago, now.  My Aunt Vickie, and cousin, Chelsea took me.  It was pretty uneventful.  Which is exactly the way I like it.

I have one more round, on Friday; and then I get a six week break.

May I tell you just how excited I am at the prospect of not having any cancer treatment during the month of November?!
It has been six weeks since I last exercised!  Between that, and the steroids I'm constantly pumping in to my body- it's no wonder I've packed on the pounds.
I'm chomping at the bit to hit the pavement running.
Seriously.
I signed up to run a turkey trot on Thanksgiving Day.
I think three weeks should be enough time to train for a 5k?  At least, I hope it is.

Bedroom Shuffle

Ever since we set Cohen "free" from the crib he has seemed to enjoy sleeping anywhere BUT in his bed.
Considering that this was the case, it stood to reason that it didn't really matter which floor his bedroom was on. It was a correct assumption.  We moved him to a bedroom downstairs, and Nick still found him sleeping in places other than his bed:

Of course, he hasn't been the only one.  Now, that I'm existing in a state of perma-exhaustion... By 7:30PM I don't really care where the kids are laying their head(s); just as long as they are. 

I mentioned a few weeks ago, that Reagan had taken over residence in Cohen's upstairs bedroom. Nick and I officially moved furniture, and now all three kids have their own rooms.

I wanted to go shopping for decor.
One afternoon I took Cohen with me, and made an honest attempt.  We drove over to Station Park. Cohen wanted me to carry him.  I could hardly believe that a laundry hamper cost $50.  And I realized that I had left my wallet at home.
It was all too tiring.  I made no purchases that day.  Or any day thereafter, now that I think about it.

Instead, I went home & decided to use what I already had.

Elsa's room was easy.  I did't change too much.  I just put down a rug that we already owned.
And I put the quilt Kay made for her, on a quilt display rack.

In Reagan's room, I put the quilt Kay made her, on the wall

Nick set up the daybed I slept on, as a child.  I already had the bedding and curtains.  And I re-used the vinyl wall decals.
 Heather came over one night, and she helped me put this vinyl wall decal up.
To finish things off, I used other furniture we already had.  And I fixed a laundry hamper that had a broken hinge.

For Cohen's new room, I went shopping in my own house, and put a dresser in his room that had once belonged to my grandma.  I did spend $20 on a headboard for Cohen's room.  But beyond that, I kept all of it very thrifty.
The next time I get a surge of energy, I'll tie everything in Cohen's room together; and I'll post pictures.
For now, I'm just proud of the results in the girls' bedroom.